December 15, 2022 How a Grantmaker Focused on Rare Diseases Galvanizes Critical Research and Patient Support December 15, 2022/ Mike Scutari Over 25 million Americans live with rare diseases, and 90% of rare diseases do not have an FDA-approved treatment. We look at how the National Organization for Rare Disorders is moving the needle in this evolving field.Read More
November 05, 2021 How a Unique Biotech Company Partners With Charities to Find Cures for Rare Diseases November 05, 2021/ Simone Ellin Rarebase is a public benefit corporation that uses genomics to identify treatments for rare diseases. The firm’s unique model relies on small foundations and patient advocacy groups to acquire funds and patient data.Read More